Today has been an especially good day as both miracles have eaten by bottle or breast every single time! We don't get our hopes too high because 1 day is not 7 days, but we are proud because 8 feeds in a row is more than 4!
Both kids are more than 7 pounds!
They have both done well on nasal cannula and the team has talked about weaning their flow. We will most likely wean Scarlett on Tuesday, the same day we take Grayson's lasix away.
Tomorrow they will have follow up ROP/eye exams. As mentioned before, they are uncomfortable which is why we have asked the team to hold off on making changes until Tuesday.
Friday, they had their first play dates with mom. Trish swaddle held them together for a couple hours! They did not seem too into it though.
They are both spending a lot of time awake in between cares. The good news is they stay pretty calm and quiet save for a couple grunts here and there if they want their pacifier.
We can't remember the last "spell" we've had where the heart rate or oxygen number drops. Even Scarlett's tachycardia hasn't shown up. She has had a couple times when her heart rate rose above 200 but it would be low (200-210) and she was obviously angry.
The only other real update we have is that they are going to run a scope through Scarlett's throat. She occasionally makes a squeaky noise that sounds like a bicycle chain that needs oil. They want to be sure that everything is OK.
We do have 2 opportunities to share with people who want to help. If you would like to bring us a meal there are plenty of opportunities to sign up. We typically get home after 9pm and some nights it is after midnight. We love the meals because it keeps us from eating drive-through items. We are not very picky but I will ask that you cook your meal beforehand so we can warm it up quickly, devour it, then get to bed so we can do it again the next day. The link is http://www.takethemameal.com/meals.php?t=RGOC1538
Also, Trish and I have decided to walk in the March of Dimes "March for Babies" this year. I was not very familiar with the organization before but they are the leading group devoted to preventing and helping premature deliveries. Without their research, our kids would probably not even be here today. You can join our team, walk with us, or donate to our team. Our webpage is www.marchforbabies.com/keepthosebunsintheoven.
And here are the pictures!
Grayson
Scarlett
The G on her badge means Grandparent. This is Sue, or Nonna as we like to call her. Nonna is the Italian word for Grandmother. Trish's mom is half Italian, despite the red hair, but married a full blooded Italian so we have our Italian grandparents and Irish grandparents.
Tim, I can hardly imagine how tired you and Trish must be but I also can hardly find the words to thank you for the update and beautiful pictures. Love that picture of Scarlett smiling...look at that dimple!
ReplyDeleteThank you, God, for continuing the miracles in Scarlett and Grayson's lives. Please help them in their ROP exams today. Nearly 100 days and over 7 pounds wasn't even in our thoughts and prayers on November 1. Your goodness knows no bounds! Please continue to bless Trish and Tim with the strength they need to carry on each day...they demonstrate their boundless love for their babies and their faith in you day in and day out. Let Scarlett and Grayson get stronger and achieve more and more on the list of "must do's" so they can go home as soon as possible. Mary, our Mother, thank you for holding this family close to you. Please intercede for them with Jesus so they can continue to overcome anything that stands in the way of them going home.