We tried to take pictures but they didn't turn out very well, so we will try again tomorrow. The twins had eye exams today so we had to keep the lights off. The suite is huge! Here is my best attempt at a paint drawing to give you an idea of the layout. The perspective is off but you can look back at this diagram when you see the pictures.
You can see that we have our own "half" of a quad, with a large common area with plenty of seats. They also had a bouncy seat set up and this unit has a large focus on development, so I imagine they use that space for the bigger kids. As the practitioner said to us earlier tonight, "Its easy to Sat 100 when you are lying in optimal position, but this unit focuses on keeping them saturated while they do age-appropriate movements."
We will start a steep learning curve tomorrow at rounds. Today was really just transitioning into the unit. They made a few changes today:
- Lasix go from every other day/twice per day, to every day/once per day. They feel the consistency takes some of the variables away.
- Scarlett will go back onto a CPAP. They won't do flows that fast on nasal cannula. She has been on a flow of 3 and 4, but at her weight the BPD unit won't go faster than 0.3. They want them to keep their lungs well inflated as it promotes growth.
- We will hold off on feeding until next week. At 37 weeks, we can give them 1 bottle/day, even while they are on CPAP.
The facilities are a huge step up for us. It will be impossible for us to compare the staff. Riverside was perfect for us the first 10 weeks. I hope our old nurses are part of the twins lives for a long time, and know they will be in our hearts forever. This unit seems to be what we need medically, now and moving forward.
We also had a couple check-ups done today, eyes and head. Neither kid had any changes with their ROP or brains.
The transitions threw us off our schedules. Grayson is looking very concerned that we forgot about his meal time!
This was how Scarlett looked when I showed up tonight. She may have been guarding her eyes from any further attacks (she had her ROP exam today) or she may have been being her dramatic self!
Right after her first tub bath. We removed her nasal cannula and this is the last picture before her CPAP comes back on :-/ She also is pretty hungry but luckily she found something to chew on!
Thank you, God, that both babies can still be together. Yet again you prove that you have Scarlett and Grayson under your watchful care. Please inspire the medical staff with the best care procedure for the twins. Mary, our Mother, we ask your intercession on behalf of the babies and Trisha and Tim. Help all of them as they adjust to new nurses and doctors and new methods and procedures. God, we ask your blessings on the babies in their new home-away-from-home so they can grow and develop and get home soon.
ReplyDeleteLove the expression on Scarlett's face after her first tub bath...look out when she's a teenager...you may be fighting her for bathroom time!
Thank you God for keeping both babies together. Thank for finding 2 beds in the exact unit the Grayson needed. Thank you for giving Tim and Trish more space to make them more comfortable. Thank you the helping Tim and Trish get more walking in :) That will help them get some exercise in and make Tim's waist happy- Tim - I mean this all in good humor :) Thank you for allowing them to be at such an amazing place with an amazing reputation. Thank you for giving Trish and Tim daily strength and courage. Thank you for allowing the twins to further work on their development. Thank you for the amazing pictures- Since we are seeing the babies from a far- I am really starting to see them grow and love the face you can see the weight adding to them. And finally - thank you for the buckeye win last night- I know a football game can be considered small in the whole grand scheme of things- but it gives a great big smile to this family and many supporters!!!
ReplyDeleteTim and Trish we are praying and supporting you- we are trusting in God that his plan is determined, mapped out - and all for the for the Glory!
Yes, more evidence that God is in control. You said it well.
ReplyDeleteI'm sure that the team from Riverside will always have a special place in your hearts and hold a special chapter in the Grayson and Scarlett story.
Wow, lots of changes coming. But it sounds like the changes will bring you closer to your goal of bringing your babies home.
Hungry babies and drama queen, I love it!
Praying that God will meet your needs today as you celebrate the Buckeye win; I'm calling it the Twin Win, Buckeyes win big for Grayson and Scarlett!
As always sending love and hugs for all.