Tuesday, January 13, 2015

The Next Day

We had our first rounds in the BPD unit today.  We met Grayson's cardiologist who specializes in Pulmonary Hypertension.  We met Dr. Lynch who will be their physician for the next 3 weeks.  This world is much bigger than Riverside.  Scarlett will probably have a different cardiologist than Grayson because of her SVT.  It seems as though the proximity allows these specialists to be assigned to the case as opposed to one-time consults.

The only real updates from rounds are that we need to wait and see how the kids do on CPAP.  They explained the extra pressure helps stretch the lungs which will help them grow.  Also, we are keeping them highly oxygenated (95% or higher) so they are not straining to breathe.

At one point in rounds I braved asking about timelines.  If everything were to be flawless from here on, Scarlett is probably about 4 weeks from going home.  Grayson is probably an additional 2 weeks.  BUT, there are many variables that delay things.

Hopefully Grayson's Pulmonary Hypertension will be cured by the additional respiratory support.  If they need to resort to medicine, his stay will be extended by several months.  Yikes!  We also have possibilities of complications with their pre-existing conditions, new things coming up (especially viruses right now) and then the "normal" preemie challenges like feeding and breathing without issues!  With all of that going on, we can rest in God.  He has brought us to this point and he will continue His work!  We know that the journey will be a hard one and that there will be plenty of opportunity to rest in the comfort of Jesus!

We did give Grayson a tub bath today!



Scarlett:


3 comments:

  1. Grayson's expression didn't look as pleased about his tub bath as Scarlett...she was probably thinking bubble baths and spas! But he is a very handsome fellow. Sorry we couldn't see Scarlett's beautiful face because of the CPAP but if that's what it takes to get her home and healthy...so be it.

    God thank you for at least a tentative light at the end of the tunnel...we are grateful that the road ahead is shorter than the road already traveled. Please let the twins make the progress necessary to get home to their very own nursery. Guide the physicians and nurses to make decisions that will help them heal as fast as possible. Please God, help Trisha and Tim...they have been through a rough time of ups and downs. Help them be strong and patient as they approach the finish line. Mary, our Mother, encircle Trisha, Tim, Ethan, Scarlett and Grayson with your loving care. Please intercede with your Son so that the twins can get healthy enough to get out of the hospital soon. We thank you, God, for all the blessings you have bestowed and will continue to shower on the Shea family.

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  2. I just want to kiss their faces

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  3. Looks and sounds like you are in a very good place right now, even though the move was challenging. The babies are beautiful; even their little fingers are getting chubby!
    We all continue to support you and pray for you and each and every one of your needs. We are all hoping for the shortest stay possible in the BPD unit. I'm sure that you and Trish and Ethan are all anxious for 'homecoming' day. You are so much closer to that than you have been. Love and prayers.

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