Saturday, November 29, 2014

4 weeks old

We had a great day celebrating their 4th week of life.  We held both kids this evening.  I held Grayson and Trish held Scarlett.  We'd like to alternate but its hard to coordinate.  We can only get them out around their care times, which is 8 times/day.  Trying to line that up with our life and Trish's pumping schedule (that was redundant because that pretty much is her life, haha) can be tough.

Grayson broke his fever around noon today.  Thankfully he was showing his personality again this evening.  The nurse put him on his belly and twice he dug his feet in and raised himself in the air, arching his back.

Scarlett had a dose of laxics yesterday and is losing a lot of the puffiness.  Her XRay showed that her lungs were not as inflated as they were before, but she is compensating for it with her breathing.  Today, they were able to significantly ween her oxygen.  Most of the day she was around 30%, whereas the day before she spent most of the day in the 40s and even up to 50%.

Grayson with a pacifier and his neoguard holding his ET tube in place. 

Scarlett wearing her SiPAP setup.  They alternate between nost prongs (which she is wearing now) and the mask that goes over top of her nose.  The dark strap is a chinstrap so she doesn't lose pressure keeping her mouth open.

5 comments:

  1. They look so much better today! I'm glad the blood and lasix worked so well! Trish, you're doing GREAT work pumping!!
    Stay strong kiddos!

    ReplyDelete
  2. Tim, it must have been a great day for both of you because your sense of humor...i.e., the pun about Tricia and pumping and your comment about Grayson and his push ups...is back. I've been missing that in the more recent posts.

    God, thank you for raising our spirits with the miracles you give us through medicine. We are grateful for the "4 weeks" signs in the babies' beds. We are thankful that Grayson's fever is gone and he was even able to do push-ups. And little Miss Scarlett's breathing and getting her oxygen weaned down...I'm running out of words but my heart is overflowing with thankfulness. Thank you for giving us positives to hang on to as we continue to beg you for healing for Scarlett and Grayson and strength and good health for Tricia and Tim. And at the risk of sounding like the children we all are...thank you God for all these great gifts but please, give us more!

    ReplyDelete
  3. So happy for a good day. So thankful for you and Trish to be able to good those babies yestrrday and that the medicines are doing their job!any prayers to all 4 of you! I agree- Trish you are doing a great job. Pumping is time consuming and is commitment of love! Go rock mama!

    ReplyDelete
  4. Don't we all love the happy posts and good reports!

    ReplyDelete
  5. Thank you, God, for such a good day and of course, always asking for more good days and continued care for these babies. Tim and Trish, you are a loving and amazing team! We continue to pray for strength, energy and grace for the day for each of you.

    ReplyDelete