Grayson had another episode this afternoon where he needed bagged. The nurse said he "clamped down," and explained his lungs just closed down on him and 100% oxygen wouldn't help, so they need to go to the bag to help him out. Otherwise his day was pretty good. They moved his Breaths Per Minute rate to 35 from 40. He spends most of the day breathing more often anyway, but this setting makes him take at least that many breaths. He received his last antibiotics by IV today. Tomorrow he will start taking them orally. They hadn't weighed him yet today but he was 2 pounds 12 ounces last night.
He was a little on the warm side again today but they think there was a bed issue. These isolettes monitor the babies temperature, then warm the bed up to keep them at the desired temperature. His bed seemed to know what his temp was, but instead kept heating him up. They manually changed the bed temperature to the lowest it would go and found another one to change him into. We get the Cadillac of beds because our kids have a high risk of needing intubated. The Giraffe Omnibed has a roof that will rise straight up about 4 feet. The other isolettes have a fixed ceiling, but they all have sides that fold down.
Tomorrow will be a big day as we do the weekly ultrasounds on Grayson's head and Scarlett's heart. I am praying that God will supernaturally heal them both.
The highlight of our day was the Kangaroo Care. Our nurses today let us set up two chairs in Scarlett's "room" (read approximately 16 square feet of tile separated from her neighbors and the hallway by curtains). Trish held our little man while I held our princess. Her machine is very loud and sounds like a white noise machine, so it was still a little tough to carry a conversation, but was possible, as opposed to when one of us is on the opposite side of Grayson's isolette.
I LOVE these positive days...thank you God...although the incident with Grayson sounds scary. I am also happy you posted early...I hope that means you and Tricia can get some additional rest tonight! That was thoughtful of the nurses to let you do Kangaroo Care in the same "room". Maybe they can angle the chairs a little (I realize the issues with tubing etc.) so you face each other a little to make conversation easier.
ReplyDeleteGod, thank you seems so insufficient for the gratitude we have for the blessings of the day. I know I'm sounding like a broken record and ever greedy for more, but please help with the ultrasounds tomorrow. Any little bit of improvement will be so appreciated (or if you have big improvements in the plan, that would be even better!) Thank you for inspiring the nurses to let Tricia and Tim do KC in the same "room". They draw strength from each other as they support their babies together. Give Tricia and Tim a restful night to restore their energy for the next day of loving and caring for Scarlett and Grayson. Keep all four of them close to your heart and safe in your care. Please let tomorrow be another good day!
Love the picture, KC time with both babies and you're sitting together.
ReplyDeleteVery thankful for the blessings of the day. Asking God for even more blessings for tomorrow. Hope you get a good night's rest. Let God restore your energies and renew you.
❤️❤️❤️❤️❤️❤️❤️❤️I just love your smiling faces and seeing you both with such joy! You are in our prayers and thoughts and we are offering prayers many many times during the day. I am proud of you both! Thank you God for this amazing day and continue to bless this family with steps toward all things positive!
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