As I entered the NICU this morning, I felt like a young child on Christmas morning, hopeful that Grayson would still be on the SiPAP but trying to temper my expectations. I arrived at our area and peered behind the curtain to see we WERE STILL ON IT! The nurse said he seemed to need higher oxygen (55%) over night, but she seemed to have him in a position where he was really comfortable and had his oxygen down to 37%. He stayed on it all day and this evening, we were able to hear him cry a little bit. The ET tubes sit on their vocal cords and do not allow them to make noise, so we were very excited to hear him whimper, even though it was a pretty pathetic attempt! We ended our night with Trish holding him for about 2 hours then transitioning him to me when she needed to pump for about another hour.
Scarlett's day was mundane but they did change her Mean Airway Pressure down to 11 from 11.5. The highest MAP on the CPAP/SiPAP machine is 8, so our goal is to get her there. Tomorrow will be a big day for her as she will get a new Echo done to see if her PDA and/or heart has changed at all. Grayson will get his brain scan tomorrow too.
Grayson without his mask.
Scarlett smiling.
Grayson holding my hand. Based on his eyes I believe he is thinking "Dad! Dad! Do you see what is happening here? This blue octopus creature keeps touching me!!!"
That's a real grip Grayson has on your finger! Great news that Scarlett is down to 11. Our prayers today will be that the daily updates continue to have little positives (or big ones if God is willing). I pray that the lasix protocol has helped Scarlett's heart and lungs and that Grayson keeps making progress every day. Isn't it amazing how something like hearing your baby whimper can be so special. Remember this time on the days when Scarlett and Grayson are yelling at each other or being otherwise boisterous when they are playing. God, thank you for showing us little miracles each day in the babies' development...like Grayson making himself heard! While we know that not a hair off their heads is lost without your knowledge, we ask you again to keep them in your loving protection and help them grow and thrive. Bless Tricia and Tim with strength to continue caring and advocating for your two most precious gifts to them. Again, guide the medical personnel as they partner with you to help Scarlett and Grayson progress each day. And thank you for 29 weeks!
ReplyDeleteJust amazing news
ReplyDeleteReally amazing!!!
I know God is with all of you! Many continuing prayers today!
I love the pictures today! Grayson hanging on to Daddy's finger says it all. It's a reminder for all of us to hang on to God, His grace, His healing power and His love. Sounds like it was a Super Sunday, praying for a marvelous Monday. Blessings for all.
ReplyDeleteThese two miracles are amazing me each day. Such fighters! Love the photo with Grayson holding on to your finger. I was thinking, those are the hands of a great football player! Huge! Thinking about you guys and holding you close in prayer. Faith and love will bring you through. Cannot wait to hold them! :)
ReplyDeleteThese two miracles are amazing me each day. Such fighters! Love the photo with Grayson holding on to your finger. I was thinking, those are the hands of a great football player! Huge! Thinking about you guys and holding you close in prayer. Faith and love will bring you through. Cannot wait to hold them! :)
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