At Rounds, I asked the doctor which baby we should worry about more. She replied, "Both. Your babies are both extremely fragile. They are having different issues but you should worry about them equally."
In times like this, I lean on God who made promises such as:
Do not fear, for I am with you; Do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you, Surely I will uphold you with My righteous right hand. - Isaiah 41:10They both had echocardiograms conducted today to look for PDA - Patent Ductus Arteriosus, In the womb, babies have a blood vessel connecting the two major arteries connected to the heart (aorta and pulmonary). Typically, this duct closes shortly after birth, but when it doesn't it is called PDA. It is a fairly common issue. Both kids had very small openings left. Technically Grayson's is smaller but neither of them are very concerning to the doctors.
We left them in great hands as they both have their Primary Nurses tonight, Kristy (Grayson) and Kelsey (Scarlett). At the time we left, there were some concerns about Scarlett's blood pressure, 55/18. They were OK with the mean, but did not like how far apart those numbers are.
Here are pics from today. Grayson hanging out under the lights:
Trish doing hand containment with Scarlett:
And here is a video from yesterday with Grayson's eyes wide open and sucking on the tube:
Think about you guys and those babies all the time, and every time you pop in my head I say a little prayer.
ReplyDeleteSending more positives thoughts your way now ����
So...each day God gives us all something for which to be thankful. Today, it is the tiny opening in the babies' hearts which is NOT disconcerting to the doctors. Something positive to hang on to as we pray for continuing improvement no matter how small. I'm sure the hardest part is waiting...patience is not always my strong suit in times like this. Take comfort in the fact that, while moments of our time may pass when something else occupies our thoughts, Scarlett and Grayson are always in God's care-filled watch. My prayer for you is that God keep you strong and never let your Faith waiver. Thank you for the pictures of your sweet children. Waiting with hope for the next update...
ReplyDeleteThank you for taking the time to update us on the twins, even though yesterday was such a challenging day. Hold fast to your Isaiah passage. It is a perfect reminder that God is holding the twins and each of you close to Himself. Candles are lit before our Blessed Mother and prayers are surrounding you. A boring day in the NICU would be a blessing today ✨.
ReplyDeleteHang in there. We are with you both in prayer and in spirit- God with you - God is with Grayson and Scarlett each minute of every day. Keep your faith strong. You are inspiring so many people to trust in the Lord. What a great reminder from Sister Dennis- to remember to God gives us something to be thankful for. I pray - right now- for you both- for the babies and their concerns- and for the doctor's and nurses caring for them. Much Love!
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