Wednesday, November 5, 2014

What We Say

Thank you for all of your love and support!  Trish is doing very well and we are slowly catching up on our sleep.  Here are all of the flowers she received while in the hospital:


There are a few sayings that we learn quickly as NICU parents:

  • Boring is good.
  • Expect 2 steps forward and 1 step back.
  • Everything is a 3 letter acronym, except NICU.
Today was boring/good.  Scarlett did take a step back as she started showing signs of PIE - Pulmonary Interstitial Emphysema.  This condition is common in babies this premature, and likely caused by the ventilators.  Essentially, the sacs in side the lungs burst and air leaks into the lungs.  Scarlett had these issues in her upper left lung this morning and they made the decision to move her to the Oscillator like her brother.  In a later X-Ray, she showed signs in her entire left lung.  Many preemies experience this and grow up without any long-term effects.

Grayson was pretty stable today.  They moved his oxygen down to 28%.

Both kiddoes were given a break from the photo-therapy today but it was more about their respiratory issues than it was their bilirubin levels.  They wanted to take today and bundle them up tight and keep the lights down to better simulate them in the womb.

Grayson squirmed a lot today.  They were giving him a pain medication yesterday with a final dose this morning thinking he was agitated with the tubing.  When I checked in around 5, Becca, the nurse said he was still wiggling around but it wasn't too bad.

Grayson taking a peek out at the world:
 Scarlett sleeping on her side to help her battle the PIE (It was pretty dark so I tried to edit and lost some quality):

6 comments:

  1. Thanks for the update Tim. It doesn't matter to me if the pics are grainy...just seeing those two beautiful babies is enough for me. Continued prayers for all of you!

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  2. Praying for clear, strong lungs today and more "boring" growth. One day, one hour, one minute at a time, guys.

    Bmuchmore

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  3. Praying for you all. Let us know if we can do anything for you please!!!!

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  4. We continue to pray for strength and courage and for the Team taking care of your sweet babies. We love you!

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  5. You and your beautiful little ones are in our prayers daily. May God bless you with peace and comfort tonight.

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  6. Thinking of you all and sending prayers for health for all.

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